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Lupus
Lupus is a word played in my head over and over again. My youngest sister was diagnosed with lupus just last year. I was shocked when I heard that the disease she already had when she was born would invite another disease in. My sister and I had the same blood disorder, Alpha Thalassemia. I fought my disease and I won but she kept losing to hers. I still remember that day when three specialist sat my family down and talked to us about how we can support her and help her fight her newly diagnosed disease. Watching her color and draw on her hospital bed fragile and pale.I kept asking myself, I kept asking God; why two incurable disease in such a tiny body. For three summers straight my sister spent her summer vacation in the hospital with an IV and the Disney channel instead of going to the zoo and playing in the water. Her daily medication went from four to seven and a pediasure.The specialists told my family that there were five stages/levels of lupus and the disease was targeting my sister’s kidneys. Just a week ago my mother told me my sister now has six specialists on my sister’s treatment team. Sometimes I pray to God to let me be the one to suffer so my sister no longer has to. Let me be the one diagnosed instead of her. Let me be the one suffering from the pain so she can go out into the sun and make sand castles. But even then lupus is secretly attacking my sister’s kidneys, Lupus wanted her not me. She still smiles on the outside every single day. She still hugs me good morning and kiss me good night. Lupus and her other disease may be messing with her on the inside but she’s still doing well in school and still wants to be a cheerleader, she still dreams of being a nurse. She still have hopes and dreams that flourish everyday because she hadfaith. Faith in God, faith in the doctors, and faith in me. Lupus, an incurable disease but it can not stop a person from dreaming. Lupus, a word that will not and can not define my sister.
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This piece is dedicated to my baby sister.